JJ was drinking pretty poorly for a few days. Eating has plateaued at a few bites of this or that. So I put him back up to the baseline dose of his acid reflux med and took him for a weight check today. he lost 2oz so he is now 16-6. he has drank formula much better since I put him back up on the acid reflux med so hopefully we will see that continue and he will gain again. He will sometimes still eat baby food carrots so I fed him some of that with "Duocal" calorie increaser in it. He woke up screaming after going to bed. He was very sweaty, continued screaming and crying, and burping a lot. The Duocal is made of all kinds of oils and I think that just does not agree with him at all. My poor guy just can't win. In the future could be an NG tube, new formula, and/or an appetite stimulant med. Also we will revisit the feeding specialist to see if we are missing anything. He seems, tho, to have all the eating skills and he uses them for a few bites or more when he wants to or can. The ng tube would just be awful because he would be pulling it out and I believe we would have to go to the ER to have it put back in with an x-ray each time.
Lots of shots are in the future for my guy too. He needs 15 m vaccines and the a shot to prevent RSV every month for 8 or so months. Today he actually was happy to visit the doctors and did not cry about being there at all. I guess that will change again soon. Shots are not a big deal after all he's been through, but we still hate to have him keep going through more at his sensitive but so aware age.
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Is it the shape of the food?
ReplyDeleteWe recently had SPD specialist in to do a training and she mentioned quirky food things such as the shape of the food and how it lands on the tongue.
Cutting carrots into french fry shape rather than round so it hits only certain touch points on the tongue. I keep reading about noodles in your posts and when you think about their shape long and skinny maybe there is something to that.
I realize JJ is more complex but perhaps the shape of the food is something that may make eating more tolerable???
Keeping you in my prayers