From left to right (Is it obvious that I have trouble with this photo program?)
You can leave me alone now....I take care of my own heart!
The nurses look much nicer when I am out of that bed!
Terri is coming to visit...I need a new blood pressure cuff (peeeuuuuu), a bath, and a comb through my crazy hair!
It was so fun to visit with Terri, I am so glad she came at Tylenol peak!
Yesterday, it was so awesome to see Jerry laugh a little and REALLY smile in his stroller. The day was full of ups and downs. We think he was in some pain still so he would be really awful when it was wearing off. He would just scream if someone came in the room. But when he was on the Tylenol he was pretty friendly and let his guard down a little.
During the night he spiked a fever again and when he felt good from the Tylenol w/codeine again, he played and laughed in bed....and pulled out his feeding tube so he could play with that! He was very impressed with himself. Then he drank 2 ounces...his first oral formula since surgery.
Today he is still on Tylenol w/coedine and the fever starts to go up when it is due. He is on antibiotics so he must just have another virus. He has been very happy and got a ride in the stroller in the halls. When he is in between happy and mad he tries so hard to hold his pouty lips together even though his laugh is trying to break through and eventually does! He is talking some again and pretty playful. Trying not to reinsert the feeding tube but he is reluctant to drink very much.
Doctors are surprised how well he and his heart are doing. The echos of his heart are showing improvement except for something with the septum looking "different" recently. Hopefully he will get on all oral meds by Monday (if the echo looks good) and then get ready to go home by Thursday or Friday. It seems like we have been here for months even though everyone here is wonderful.
Isaac went back to Cleveland last Thursday with his grandparents. He developed a fever that night but now seems to be getting better. We want him to come and be here with us as JJ makes his full recovery but are not sure how we can get him here. John's parents will probably not bring him back until after July 4th, which is a little long for us. I really miss him and know Jerry would be so happy to see him.
I am so glad that Jerry is healing and that he will be home here in Oswego soon! We will continue to keep you all in our hearts and prayers! Love, Jen
ReplyDeleteThinking of you all and we are so glad that Jerry is doing better.
ReplyDeleteHugs from Annika, Mike, Max and Isabella
GREAT photos -- so good to see Jerry being more of a little boy with a personality, even though he's not always feeling well. We are praying for a return home this week! :)
ReplyDeleteHello from Saint Louis!!!! I have been reading the blog almost daily and am so happy to hear of Jerry's progress. He's definitely a wild one and I knew we'd get the tube out and he'd be back to his crazy little self again! You are an amazing family and it has been such a pleasure helping care for Jerry even if only for a short while. I'm thinking about you guys and hoping you get home as quickly as possible! Love, Nurse Megan
ReplyDeletePS> Has he been able to go on a wagon ride around the unit post-op yet?!
Thank you so much for taking the time to keep us all posted on Jerry's progress...It has been so nice to be able to cry and laugh along with you. We can't wait to see all of you back in the neighborhood! Take care! Love, Laura
ReplyDeleteI love you Jerry you are doing great!
ReplyDeletetell your mom she is a LOUD TALKER!
Love Justin AKA Jus jus
Isacc is doing great he slept over at our house he is doing great he says he misses mom and jerry !
ReplyDeleteLove,
The Branums