Great News!

Today Jerry had his appointment at CCMH. The doctor showed me the echo and told me that the squeeze function of his heart is now in the normal range! We are ecstatic about our little miracle and so happy. Of course there are still concerns and his heart is not likely to ever be completely normal. The relaxing function of his heart is not good and needs monitored and treated. We are dropping two meds...lasix and dijoxin. This is scary for us but we know the doctors are so careful and would not do that if it was not for sure ok. We will go back on Oct 2nd.

Our friend (and my new adopted Chicagoland sister), Terri, watched Isaac at her house while I took Jerry. It was so wonderful to be able to focus on Jerry and so nice for Isaac who did not even want to go home with me. Jerry might have missed Isaac a little as he cried a lot for half of his echo. Isaac can sing to him or act silly and calm him right down. All was for the best for today for sure!!

JJ's eating seems to be slowly improving again especially with interest and pleasure in eating. We also may try a new 30 cal formula. On the scale today he weighed 16 pounds and 10 oz which is a little gain so that is good and all of my worries about a feeding tube seem so silly at this point. We see a speech therapist feeding specialist on Friday to see if she has any ideas.

Jerry is walking like a champ..sometimes backwards and sideways like the Michael Jackson moon walk (I don't think it's on purpose!) and I have videos to post this weekend.