How did I never publish this??? Probably I was going to add photos and never did. so it looks like the jerry turned 6 post is after the jerry turned 8 post! Oh well....
My sweet baby turned 6! I can't believe it. He is ornery as ever but so so funny! He is doing great overall. His endurance is amazing as he keeps up with big brother and all the big kids in his neighborhood. He graduated from kindergarten and won the "Attitude is Everything" award from his teacher. He is always smiling and puts a positive spin on any situation. He makes up for his small size with his smile, energy, and confidence.
He will have a growth appointment this summer and probably need some testing for that. He is eating pretty well and gaining some weight but really not like he should be. He will have a cardiology appointment early in the fall with new testing there as well. I have no concerns for his heart recently. He has only had a few episodes where he seems to get overly exhausted and feels sick from it.
We found out he has some hearing loss. He wasn't hearing us at home over the past 6 months or so and I could tell he was not hearing everything at school either. Mostly I figured it was when he was sick and his ears were clogged but then it continued when there was no congestion. I had the school SLP test him and he failed. The ENT put him on steroid nose spray, and antibiotic for the fluid he noticed in his ears. When we returned there was still fluid. We will add in an allergy med just in case it is that and return before school starts. If we cannot get the fluid to clear he will need tubes to get his hearing back to normal. Always something!
Big brother Isaac is doing well. His mood issues continue but I really believe we are working in the right direction with a few medications and, as always, lots of positive reinforcements and consistency. Organized sports became too frustrating for him. He still plays for fun but has been doing horse back riding and swimming lessons. He is an amazing reader and so sweet and caring. He is growing up so fast. He loves that he can make some of his own simple meals...and so do I!
Enjoy some pics!
skip to main |
skip to sidebar
I am a strong little guy with cardiomyopathy now known to be caused by ALCAPA. I love my brother so much. My nick name is "crazy hair." I have tons of energy despite my condition and love to talk and use my sign language to let everyone know what I want. I am grateful for all the people that love me and take care of me and want more than anything to make people smile.
No comments:
Post a Comment