We started the periactin (appetite stimulant) on Saturday night (it's 2x/day). We noticed right away that it made him calm and sleepy. He only woke once that night to eat. We may have found a new use for this drug! He has taken naps without any waking and is just altogether calmer about going to sleep. A 2 hour uninterrupted nap should NOT be underestimated! Not like he's druged or anything...just comfortable and not edgy....can't quite find the perfect description..but anyway, it's all good.
As for the eating, he has been eating and drinking faster than usual and asking for food by name more often. He had a really good day of eating on Sunday but then threw up twice. He threw up once when he had a little coughing spell and then again when he wouldn't quit playing with the dishwasher door (he knows how to unlock it) and pulled it down on his head!! It hurt so he cried and threw up. I cried too. I just stood there in tears as all of his calories went down the drain. Now his cold has been pretty bad today and he is not eating well...still drinking formula faster than usual. I am still hopeful. Also, this seems impossible but, He has been weighing 18.6 or 18.4 on our scale...tonight....20 pounds!!! I am not really sure how or why but I think I can turn the poor kid's car seat around!! This week he goes to get synegis shots so we will get a weight at the doctors office then and it usually matches mine. He's been doing better at check ups and now shots again, ugh! I guess I am a little skeptical of the weight or else it would have been it's own entry. I called the surgeon's office today and they will call me back with an appointment time to start the process for the G-tube...but I am not giving up yet.