quick update

A really nice extra couple of days. Every weekend should be so long. Jerry seems to be sleeping better for the most part. He had one really bad night a few nights ago where he was definitely in some kind of pain. He was kind of clawing at his face and neck and sounded a little congested so I thought for sure he was getting sick. He seemed to grab his chest a few times but with his heart rate seeming OK I kind of dismissed that. After we gave him Motrin he slept until morning and seemed fine the next day. Then he had two great nights of sleep. Naps are still bad with him waking up crying every 45 minutes or so on most days. We comfort him a little and usually can get a 2-3 hour nap in. He is eating some pretty good meals but usually just a few bites of a couple things. For a while he seemed to be drinking 4 and 5 ounces at a time but now he seems back to 2 ounces here and there. Friday's echo will hopefully confirm everything is the same or better with his heart and it will be a big relief.

A fun little note...JJ is so affectionate, funny and sweet. He is talking pretty well and can tell little stories with his gestures and vocabulary. When he runs with open arms for hugs it is the best!